The falling cost of genomic sequencing could raise ethical dilemmas because advancements in genetic testing are moving faster than policies to protect privacy, according to a presidential commission.
“The life-saving potential of genome sequencing depends on gathering genetic information from many thousands (perhaps millions) of individuals, most of whom will not directly benefit from the research,” says Amy Gutmann, Ph.D., chair of the Presidential Commission for the Study of Bioethical Issues, in a new report. Those willing to share such information should be assured of appropriate confidentiality, she notes. But right now, they aren’t.
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