The Workgroup for Electronic Data Interchange, an advocacy organization and advisory body to the federal government, is studying issues related to genomic data exchange, particularly how it can improve care coordination.
Some in the genomics field believe within five years genomic sequencing of an individual will cost $99, says Devin Jopp, CEO at WEDI, in an interview with Health Data Management. That price point could surge the number of individuals getting their genomic blueprint and use of genomic data, so now is the time to start considering how all that data would be used.
Work started in February with 10 members and the group will open deliberations to more stakeholders in May to get help on molding policy, as This is greenfield medicine, Jopp says in an interview with Health Data Management. He expects a final report will be released later in May.
Also See: WEDI's ICD-10 Survey: 8 Reasons to Worry
Questions needing answers, Jopp says, include: Who pays for sequencing? Who owns the genomic data? How would the data be secured? How would the data meld into healthcare workflows? How can it improve care coordination during a 10-minute office visit?
WEDI also has several other research projects in the works, including:
* How to normalize public registry data while answering the question of how much information can be gleaned from claims data versus the clinical data in registries. Public health agencies want registry data for disease/threat surveillance, researchers want it for population health management and providers want it for surveillance and to benchmark their own performance, among other uses. Normalizing data and including more accurate EHR data within registries can make them more attractive to utilize.
* A focus on helping vendors, providers, payers and other stakeholders do better with implementing and using intrusion prevention tools, conducting ongoing intrusion and detection activities, and improving employee security training.
* An examination of how to scale new payment models to support the rapid growth of value-based reimbursement and to have the data to share clinical information nationwide, particularly with bundled payments. Spreadsheets are the way now, but wont support an eventual nationwide adoption of these payment models.
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