The National Institutes of Health wants to create and test web tools for youth with chronic diseases to help them make informed decisions about clinical research and increase motivation to participate in clinical trials.

“The current lack of knowledge surrounding pediatric clinical trials can be dangerous and unhealthy towards the lives of youth, becoming a large public health need,” according to an NIH notice posted in today’s Federal Register

Also See: Sutter Health Launches Online Tool for Teen Patients

The proposed web-based resource will be “developmentally appropriate” for youth aged 8 to 14 years and will include an interactive leaning module, full length video testimonials, as well as an electronic comic book. The theme of “investigative cyber-reporting” will be used throughout the online tool and will include the ability of young users to make a series of decisions about different aspects of participating in clinical research studies, states the NIH announcement.

“Language typically used in journalism and design elements reminiscent of journalism will be incorporated into the content, design, and layout of the resource,” according to the NIH proposal.

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