Advocacy organization Patient Privacy Rights has published the Privacy Rights Framework, with 15 core principals comprising more than 75 auditable criteria to measure and align privacy policies to acceptable business practices.
The Framework is designed to help measure and test whether health information systems and research projects comply with best privacy practices in such areas as whether patients have control over their protected health information, an organization obtains meaningful consent before disclosing data and obtains new consent before secondary data use occurs, patients have the ability to selectively share data, and the organization uses servers housed in the United States, among other factors.
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