Draft legislation in the House Energy and Commerce Committee would require the Department of Health and Human Services to publish recommendations for development of clinical data registries to improve patient care.

The bill, introduced by Rep. Pete Olson (R-Tex.), calls for specific recommendations from the HHS Secretary “for a set of standards that, if adopted, would allow for the bidirectional, interoperable exchange of information between the electronic health records of the reporting clinicians and such registries.” The proposed legislation directs HHS to come up with recommendations on how clinical registries, including outcomes-based registries, may be developed and used to evaluate the impact of care models and methods on the management of chronic diseases based on clinical practice guidelines and best practices--such as A1C, blood pressure, and cholesterol levels in the case of diabetes.

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