The Agency for Healthcare Research and Quality will build the Registry of Patient Registries, the central collection point for information from all patient registries in the nation.

The national patient registry, authorized in the 2009 economic stimulus law, will follow the model of the national clinical trials registry at, according to an AHRQ notice published in the Federal Register. Attempts have been made to use the trials registry to also house patient registry data, but the system hasn’t meet stakeholders’ needs, the agency notes. The trials registry launched in 2000 and now holds information on nearly 129,000 trials in 179 nations.

For your consideration: Providers Share Data for Large Diabetes Registry

“To ensure that resources are used in the most efficient manner, registries need to be listed in a manner similar to that of trials in,” the AHRQ notice states. “By creating a central point of collection for information about all patient registries in the United States, the Registry of Patient Registries helps to further AHRQ’s goals by making information regarding quality, appropriateness and effectiveness of health services (and patient registries in particular) more readily available and centralized.”

Register or login for access to this item and much more

All Health Data Management content is archived after seven days.

Community members receive:
  • All recent and archived articles
  • Conference offers and updates
  • A full menu of enewsletter options
  • Web seminars, white papers, ebooks

Don't have an account? Register for Free Unlimited Access