Eleven provider/payer delivery systems, including six Kaiser regions, have created a diabetes registry by contributing de-identified data from their electronic health records systems.
The Surveillance, Prevention, and Management of Diabetes Mellitus Data Link, called SUPREME-DM, is the largest private sector diabetes registry in the nation, according to the organizations. It includes data from 1.1 million plan-covered diabetic patients in California, Colorado, Georgia, Hawaii, Michigan, Minnesota, Oregon, Pennsylvania, Washington and Wisconsin.
The data includes test results, prescription records, information from hospital and ambulatory visits, and vital statistics. The project is maintained by 33 diabetes researchers.
Participating organizations joining Kaiser are Geisinger Health System, Group Health Cooperative, HealthPartners, Henry Ford Health System and Marshfield Clinic.
Supreme-DM DataLink is part of a larger data-sharing initiative--the Virtual Data Warehouse from the HMO Research Network--a consortium of 19 delivery systems that have agreed to standardize datasets from their EHRs. More information is at hmoresearchnetwork.org.
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