In what is being touted as the first real-world trial of the impact of patient-controlled access to electronic health records, almost half of the patients who participated in the study withheld clinically sensitive information in their EHR from some or all of their healthcare providers.

During the six-month trial, a partnership between Regenstrief, the Indiana University School of Medicine, and safety net provider Eskenazi Health, 105 patients in an Eskenazi Health primary care clinic were able to indicate preferences for which clinicians could access sensitive information in their EHRs, such as information on sexually transmitted diseases, substance abuse or mental health, and designating what the clinicians could see.

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