The Department of Health and Human Services is seeking public comment on ethical issues raised by easy availability of large amounts of human genome sequence data.
The Presidential Commission for the Study of Bioethical issues is examining the balancing of privacy and data access, and individual and societal interests. “As a result of the tremendous technology advances that have dramatically reduced the cost of sequencing, the science is at a point where relatively inexpensive, rapid sequencing of whole human genomes appears not only likely, but imminent,” according to the notice, available here on March 26 and being published March 27 in the Federal Register. “This prospect raises many questions for the scientific, medical, ethics, and patient communities related to how this information can and ought be collected, used and governed.”
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