About 70 organizations in more than 40 nations have agreed to create a model for secure sharing of genomic and clinical data to speed medical research.
The groups have signed a non-binding letter of intent to create an organization, modeled after the World Wide Web Consortium, to develop a framework for international data sharing, and to build interoperable data platforms. As the cost of genome sequencing continues to fall and more individuals choose to make their genetic and clinical data available for research, the organizations say they recognize that they must work together.
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