The Canadian government is the first in the Americas to launch an Internet-based effort to help its residents with rare diseases get information they need to help combat those diseases, as well as access to drugs that may help their treatment.
Through an international portal called Orphanet, the new framework will be designed to spur research and innovation in Canada. Building on existing international experience and knowledge, it will provide Health Canada with new tools to gather and share information, including the registration of clinical trials. It will also facilitate patient participation in this highly specialized area.
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