The federal Genetic Information Nondiscrimination Act was enacted in 2008 and includes important privacy protections for consumers. But up to 80 percent of the nation’s population, including many physicians, are unaware of the law, says Jeremy Gruber, president of the Council for Responsible Genetics, an advocacy group.
Gruber laid out the protections and gaps of GINA during the recent Health Privacy Summit in Washington. The law covers employment and health insurance, and has expansive coverage in protecting data, test results and family health information without limitation, he noted.
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