The Agency for Healthcare Research and Quality will build the Registry of Patient Registries, the central collection point for information from all patient registries in the nation.
The national patient registry, authorized in the 2009 economic stimulus law, will follow the model of the national clinical trials registry at ClinicalTrials.gov, according to an AHRQ notice published in the Federal Register. Attempts have been made to use the trials registry to also house patient registry data, but the system hasn’t meet stakeholders’ needs, the agency notes. The trials registry launched in 2000 and now holds information on nearly 129,000 trials in 179 nations.
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